If you are a wilson patient or relatives of a patient and wish to become a member of the Danish Wilson Association, all you need to do is send an email to firstname.lastname@example.org and everything will be arranged from there.
Every year in September a Wilson Patientweekend is held, different places in the country. The program for the weekend normally consists of lectures by doctors, nurses or other experts on relevant subjects. Besides that there is time for a lot of cozy gettogether and a dinner including accomodation and breakfast the day after, perhaps followed by an excursion. Here you can exchange experiences and get to know one another. There is a members own payment for the weekend. Traveling allowance is given to each member, for the distance travelled to the weekend location, so distance in the country should not be an obstacle.
In connection with the Patientweekend the yearly General Assembly is held.
The yearly membership fee and the members own payment for the Patientweekend is set by the Board of Directors on the General Assembly meeting.
For the young patients and relatives, there is a Wilson Group for Young People (WUG) where more informal get togethers can be arranged and experiences shared on Facebook.
As a member you get:
- Support and help from the Board of Directors and the members.
- A network with other members in the same situation as you.
- Newsletters and option to participate in relevant lectures and courses.
- A yearly - very cozy - weeeknd stay which reinforces the bond between the members.
- Team building courses.