Patients can always turn to their physician for further information. Information can also be found on the Internet, e.g. (www.Wilsondisease.org). The Danish Wilsonís Association publish information of the disease here. Changes in the treatment and/or drugs are, however, only to take place in agreement with your physician.
At Rigshospitalets Hepatological Department there is a Danish centre with responsibility for coordinating the treatment of Wilsonís disease patients in Denmark. The centre collects knowledge of the latest methods for treatment and surveys most of the Danish patients today. The centre is to be informed of all patients having the disease and its expertise is available for patients and physicians.